Subscribe

Get notified when a new episode is published every other Saturday.

 

Latest episodes

Hear from people who influence the rare disease community.

Episodes
Part 2: Words We Don’t Say Out Loud
Part 2: Words We Don’t Say Out Loud
Read more →
Rare Parents Performing ALL the Time
Rare Parents Performing ALL the Time
Read more →
Embracing the Suck - A Parent and Physician’s Journey with rare Disease
Embracing the Suck - A Parent and Physician’s Journey with rare Disease
Read more →
Summertime… It’s Different for Us
Summertime… It’s Different for Us
Read more →
Jessica Patay - Offering a Lifeline
Jessica Patay - Offering a Lifeline
Read more →
100th Episode A New Season, A New Era
100th Episode A New Season, A New Era
Read more →
All episodes