Plans Change. Dreams Shift. - Mariah Swanson

“This journey has changed our lives, has reshaped my identity. Plans change, dreams shift. I've had to learn to become more than just a mom.”

 Mariah only started this journey earlier this year.  She has climbed the initial learning curve very quickly and has used her professional skills to navigate the logistical, interpersonal, and emotional twists that rare diagnosis brings.  She even found time to talk to us on Raising Rare.