Missing Pieces in the Puzzle of Pain Management

“Raghav’s expression for discomfort is laughter, counterintuitively. We call it his cranky laughter.” Sanath Ramesh

Imagine not being able to tell the people around that you are in pain. Or more accurately, imagine that you have no way of telling whether your child is in pain. If that child is usually happy and laughing, imagine your horror when you figure out that laughter means “ow.”

Pain management is a very difficult problem in the best of circumstances.

In this episode, Sanath opens up about their relentless struggle to keep Raghav comfortable and the extreme toll it takes on everyone in the family.